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What do doctors do now when they encounter a patient with intersex? Can ISNA refer me to a doctor, a counselor, or a support group? Unfortunately, there are still very few supportive resources available to intersex people and their parents. In particular, there are literally no doctors in the country who focus on care for adults with intersex conditions. The main reason is that doctors have thought of intersex as a condition of childhood that is eliminated through surgery and creative interpretations of "truth".

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What do doctors do now when they encounter a patient with intersex? Can ISNA refer me to a doctor, a counselor, or a support group? Unfortunately, there are still very few supportive resources available to intersex trajs and their parents. In particular, there are literally no doctors in the country who focus on care for adults with intersex conditions.

The main reason is that doctors have thought of intersex as a condition of childhood that is eliminated through surgery and creative interpretations of "truth". Does ISNA run support groups or an e-mail list for people with intersex conditions? The short answer is no.

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We have provided mucj resources in the ancient past, but unfortunately we currently do not provide them. Many people about how they might help ISNA.

You do not have to be an intersex person to help create a world free of shame, secrecy, and unwanted genital surgeries on intersex children. Schedule a lunch or roundtable with your colleagues and invite someone from ISNA to attend.

Read and watch our materials and share them with others. Also, watch our website in the Spring of for teaching packets you can frans.

Take direct cun by speaking with your teachers if they misuse or misrepresent intersex issues in classrooom settings. Help us by getting the word out and making your professors and classmates aware of our website. Run a story about intersex in your newsletter.

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Make donations to ISNA when you can or purchase our materials so we can continue doing our important work. Rather than doing it in name only, we hope that organizations that choose to include an "I" do so because they want to educate their members about the issues intersex people face and are ready to commit to fighting the stigmatization of intersex people along with homophobia and transphobia. What does ISNA do? Because our resources are limited, we cun organizing efforts that would cu systemic changes rather than simply providing service directly to intersex people tans their family members.

To that end, we focus our resources strategically on educating medical professionals as well as general society about issues faced by people with intersex conditions.

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What is ISNA's mission? The Intersex Society of North America ISNA is devoted to systemic change to end shame, secrecy, and unwanted genital surgeries for people born with an anatomy that someone decided is not standard for male or female. We have learned from listening to individuals and families dealing with intersex that: Intersexuality is primarily a problem of stigma and trauma, not gender. With your help, we can make the world a safer place for families dealing with intersex conditions.

Where is ISNA located?

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Seriously, ISNA is a virtual organization; with activities being carried out in many locations throughout the country. Our staff, volunteers, and board interact on a daily basis via intranet, trouble ticketing system,and telephone and occasionally even in person! Who are involved in ISNA? How come many people have never heard dum intersex?

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A lot of people in our culture also had no interest in hearing that sex doesn't come in two simple flavors. For over a decade we at ISNA have been successfully working to de-stigmatize intersex and to let people know that folks with giros are all around.

ISNA representatives have appeared in dozens of local, national, and international television and radio programs, and in virtually all major newspapers and magazines. Eo estimate conservatively that we've reached 30 million people since grls People who are intersex will tell you that the primary thing they've been harmed by is induced shame about their intersex. The best way to reduce shame and thereby reduce harm to individuals and families coping with intersex is to talk openly and honestly about intersex.

If you've learned something new at our site today, tell someone else about it. Thanks very much!

Is a person who is intersex a hermaphrodite? The mythological term "hermaphrodite" implies that a person is both fully male and fully female. This is a physiologic impossibility. The words "hermaphrodite" and gitls are stigmatizing and misleading words. Unfortunately, some medical personnel still use them to refer to people with certain intersex conditions, because they still subscribe to an outdated nomenclature that uses gonadal anatomy as the basis of sex classification.

The terms fail to reflect modern scientific understandings of intersex conditions, confuse clinicians, harm patients, and panic parents. We think it is much better for everyone involved when specific condition names are used trzns medical research and practice. Does having a Y chromosome make someone a man? A lot of unintended harm happens when people assume a Y chromosome makes a person a boy or a man and the lack of a Y chromosome makes a person a girl or a woman.

It is true that in typical male development, the SRY gene on the tip of the Y chromosome helps to send the embryo down the masculine pathway. In terms of hormone effects on their bodies including their brainswomen with CAIS have had much less "masculinization" than the average 46,XX woman because their cells do not respond to androgens. Moreover, the SRY gene can be translocated onto an X chromosome so that a 46,XX person may develop along a typical masculine pathwayand there are dozens of genes on chromosomes other than the X and the Y that cm to sexual differentiation.

And beyond the genes, a person's sex development can be ificantly influenced by environmental factors including the maternal uterine environment in which the fetus developed. So it is simply incorrect to think that you can tell a person's sex just looking at whether he or she has a Y chromosome.

Want to know more? Charmian Quigley: SRY, discovered inis a small gene located at the tip of the short arm of the Y chromosome. So what does it do?

Actually, like all genes, it does nothing except to act as a blueprint for a protein. In this case, the protein of the same name does funky things to DNA, like bending it and unwinding the 2 strands, so that other proteins can get in and attach themselves to other genes that are then turned on. As is pretty common in the world of genetics, this was because of some errant mice.

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Researchers in England took a laboratory-made copy of this gene and inserted it artificially into a female XX mouse embryo at a very early stage of development. Well, maybe not. A few years later, a similar gene was found on human chromosome When the important girps of this gene was inserted into a female mouse embryo, the same thing happened. A male. So now we have 2 genes that can turn a female into a male, and one of them is not located on the Y chromosome!

How can that be? It turns out that SRY is probably just a facilitator that allows a more critical gene or genes to function, by blocking the action s another opposing factor.

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Can the magic of genetics do the opposite — turn a male into a female? Indeed it can. So now we have genes on the Y that can turn females with XX chromosomes into males and genes on the X that can turn males with XY chromosomes into females. Maleness and femaleness are NOT determined by having an X or a Y, since switching a couple of genes around can turn things upside down. About 1 in 20, men has no Y chromosome, instead having 2 Xs.

This means that in the United States there are about 7, men without a Y chromosome. The equivalent situation - females who have XY instead of XX chromosomes - can occur for a variety of reasons and overall is similar in frequency. For these 15, or gidls individuals in the US and who knows how many mucytheir chromosomes are irrelevant.

It is the total complement of their genes along with their life experiences physical, mental, social that makes them who they are or any of us, for that matter. The last time I counted, there were at least 30 genes that have been found to have important roles in the development of sex in either humans or mice. Of these 30 or so genes 3 are located on the X chromosome, 1 cim the Y chromosome and the rest are on other chromosomes, called autosomes on chromosomes 1, 2, 3, 4, 7, 8, 9, 10, 11, 12, 17, In light of this, sex should be considered not a product of our chromosomes, but rather, a product of our total genetic makeup, and of the functions of these genes during development.

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Is intersex the same as "ambiguous genitalia"? No, saying someone has an intersex condition isn't the same as saying she or he was born with "ambiguous genitalia," because some people with intersex conditions have genitalia that look pretty typically masculine or feminine. So, for example, girls born with XY chromosomes and complete androgen insensitivity syndrome have genitals that look pretty typically female.

And some children born with XX chromosomes and congenital adrenal tarns are born with genitals that look thoroughly male. Yet nearly all medical professionals agree that these kinds of conditions are intersex. Sl do we put the term "ambiguous genitalia" in quotation marks? William Reiner likes to point out, no child thinks his or her own genitals are "ambiguous.

It's the grown-ups who are feeling ambiguous. To about what can count as "intersex," go to our FAQ mucu "What is intersex?

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If you click "genitals" on the left, then "genital formation" on the left, you'll find an animation that shows how boy genitals and girl genitals start out looking the same from conception to week 7then develop along different lines under the influence of hormones. If the fetus has an unusual level of certain hormones, or an unusually high or low ability to respond to them, then intersex appearance can result.

What is the current policy of the American Academy of Pediatrics on surgery? Pediatrics 01 Additional surgery is often necessary. People who have intersex conditions have anatomy that is not considered typically male or female. Most people with intersex conditions come to medical attention because doctors or parents notice something unusual about their bodies.

In contrast, people who are transgendered have an internal experience of gender identity that is different from most people.

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These are similarities. In spite of these similarities, these two groups should not be and cannot be thought of as one. The truth is that the vast majority of people with intersex conditions identify as male or female rather than transgender or transsexual. Thus, where all people who identify as transgender or transsexual experience problems with their gender identity, only a small portion of intersex people experience these problems.

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